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Resources and Links

Cancer

American Cancer Society

Chemotherapy. com

The graphics alone make this site worth visiting. In addition to being beautiful and easy to navigate, Chemotherapy.com offers start to finish information on understanding exactly what cancer and chemotherapy is, staging, side effects, other treatments, navigating the insurance maze, tracking your test results and a complete glossary of cancer terms. Highly recommended.

NCCS-National Coalition for Cancer Survivorship

As the oldest survivor-led advocacy organization, NCCS is a highly respected authentic voice at the federal level, advocating for quality cancer care for all Americans and empowering cancer survivors. Visitors to NCCS’s Web site, www.canceradvocacy.org, will find educational resources to help them live with, through, and beyond cancer, including the award-winning Cancer Survival Toolbox®.

Pediatric Oncology Resource Center

Ped-Onc Resource Center is a web site for parents, friends, and families of children who have or had childhood cancer. An incredible, comprehensive site that’s easy to read and navigate. Detailed information on all types of childhood cancers, from symptoms, treatments, family support and grief support. A great resource page including where to go for financial help, free or low cost wigs for children, air transportation, camps and more. Highly recommended.

Cancer and Careers A resource for working women with cancer.

I love this site by Cosmetic Executive Women, a nonprofit organization representing women in the U.S. and European beauty industries. This attractive, easy to navigate site is full of helpful, information and empowering articles that are thorough but not too long, on everything from creating an action plan, reading a pathology report, dealing with insurance, how to tell your co-workers, hair, skin and makeup help (Of course. They’re the Beauty Industry!) and sharing stories. Highly recommended.

Chemotheapy and Beyond

Scott Hamilton’s chemotherapy site offers the latest chemo information for cancer patients and their families, caregivers and friends.

Ovarian and other Gynecological Cancers

Women’s Cancer Network 

Developed by The Gynecologic Cancer Foundation (GCF) and CancerSource, the WCN is a comprehensive, interactive Website offering detailed information on all kinds of gynecological cancers, risk assessment, clinical trials, the latest news, survivor stories, a booklist, and a guide to finding a gynecological oncologist in your area. Highly recommended.

National Ovarian Cancer Coalition

An important national advocate for patients and families struggling with ovarian cancer. This site contains detailed, easy to understand information about ovarian cancer, as well  as the latest news, discussion board, info on clinical trials, resources and links.

Breast Cancer

Breast Cancer.org

breastcancer.org is a nonprofit organization dedicated to providing reliable, complete, and up-to-date information about breast cancer. A colorful, easy to navigate site that provides comprehensive information from diagnosis through recovery, as well as open chat rooms, discussion boards, online conferences. Highly recommended.

Imaginis

Imaginis is an independent, award-winning, comprehensive resource for information and news on breast cancer and related women’s health topics. The Imaginis web site contains thousands of pages of detailed, physician-edited health information and the content is continually updated and growing every day. It also covers related women’s health topics such as hormone replacement therapy (HRT), multiple sclerosis, osteoporosis, and ovarian cancer. Highly recommended.

Young Survival Coalition

The Young Survival Coalition (YSC) is the only international, non-profit network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer. Through action, advocacy and awareness, the YSC seeks to educate the medical, research, breast cancer and legislative communities and to persuade them to address breast cancer in women 40 and under. 212-206-6610

Lymphoma

Lymphoma Information Network. A comprehensive guide to Hodgkin’s and Non-Hodgkin’s Lymphoma. This award-winning site, created by an 11 year survivor of stage IV-B Hodgkin’s Lymphoma, strives to do three things: “Put a bit of humanity and understanding to this disease, to gather lymphoma information and resources in one place, and to present information in an easy to understand, logical format.” It does so beautifully. Highly recommended.

Alopecia

National Alopecia Areata Foundation

The mission of the National Alopecia Areata Foundation (NAAF) is to support research to find a cure or acceptable treatment for alopecia areata, to support those with the disease and to educate the public about alopecia areata. Special pages for teens and children.

Crowned Regal

Annette Moore has created a wonderful website that begins with her own alopecia story. From shock, shame, guilt and denial, she finds strength, self-acceptance and finally empowerment. Discovering, embracing and redefining beauty, she has made it her mission to create a circle of self-empowerment through self-acceptance and provide resources and help that was not available to her when she needed it most. Her story and her site are inspiring, and provide a very comprehensive list of resources. Highly recommended.

Bald Girls Do Lunch

is here to help you. Its core mission as a nonprofit is to give you inspiring tools to deal successfully with the effects of alopecia areata. Women meet for fun and fellowship over a tasty lunch. Lead by Bald Girls founder Thea Chassin, these lunches break isolation and shame and bring you into a healing circle that renews and redefines your sense of self. With wit and wisdom, Thea offers lively strategy sessions that act as gentle catalysts to speed self-acceptance. For more information and to find a lunch near you, visit http://www.baldgirlsdolunch.com/

Her Alopecia 

Created by women, for women. A free, non-profit community resource for female hair loss sufferers, providing an interactive community and source of support dedicated entirely to women experiencing hair loss.

Children’s Alopecia Project

A non-profit directed specifically to children with alopecia. The goal is to generate public awareness of the disease and to raise money for research and build self-esteem via support group participation for children and their parents.

Trichotillomania

Trichotillomania Learning Center, Inc. 

An excellent, easy to navigate site. A comprehensive resource for compulsive hair-pullers, their families and friends, medical and mental health professionals, and others interested in learning about this often-misunderstood disorder. Highly recommended.

StopPulling.com

StopPulling.com is an easy to use, on-line behavioral program designed to help individuals manage their trichotillomania. Developed by three women doctors who are specialists in treating trichotillomania.

Hair Loss–general

Hair Loss Talk

Hair Loss Talk is an independently run, privately owned consumer hair loss information site focused exclusively on treatments backed by clinical evidence. They have an amazing resource library, product reviews, discussion groups, advice and support, information on all types of hair replacements options. Highly recommended.

 

Hair Loss Direct

The Hair Loss Everything Pages, find hair loss forums, hair transplant surgeons, consumer hair loss sites and more.

Beauty

Look Good Feel Better

A national public service program to help women undergoing cancer treatment learn to cope with the appearance-related side effects of treatment and regain a sense of self-confidence and control over their lives. Founded and developed by the Cosmetic, Toiletry and Fragrance Association (CTFA) Foundation, in partnership with the American Cancer Society (ACS), and the National Cosmetology Association (NCA). Click link or call toll-free 1-800-395-LOOK

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